blog, poetry, Musings

On Living & Learning 

by Alyssa Erin

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From the Blog

This is 5 years

This is 5 years of living with Long COVID, of surviving this ableist capitalist hellscape with Long COVlD. I am full of both joy and rage. Cheers to my kin who know this in their bones. There are joys that exist because of my disabilities - not in spite of them. We...

The Memory Box

I'm in the storage loft searching for an old dry bag we used to have. We are driving out to the coast for a vacation, just the two of us. The tiny home we rented boasts a 2 person kayak and I am eager to try some gentle paddling in the harbor. I know my partner will...

Making Home

Part 2/2 Learning to make a home began within myself. Because my vision for home is as a refuge, it is a safe place for joy and grief; for self-expression; for learning and for resting. It is a place to build core memories. Home is where I have room to heal and...

Seeking Home

Part 1 of 2 I recently borrowed Jeremiah Brent's book from the library. The Space That Keeps You: When Home Becomes A Love Story is a collection of stories and photos on what makes a home and what that means to people. Brent is a designer I have long admired - for his...

How illness gives, even as it takes

Final post of three-part series on relationships and needs in my chronic illness/disability context I initially planned to write on the frustration, internalized ableism, and guilt that comes with having less capacity to support and care for my spouse. It is true - I...

How chronic illness changed our lives

Part Two of a series on relationships and needs in my chronic illness/disability context From 2012-2021, I worked as a Physiotherapist in acute care - with people admitted to hospital. I worked outside the home 5 days per week, and sometimes more with our weekend and...

How ableism erases our stories

Part One of a series on relationships and needs in my chronic illness/disability context. Ableism erases our stories and distracts from our truths. It causes disconnection. And disabled people are just as capable of perpetuating this. My own ableism can show up as...

A Healing Year

*based on a real 2024 journal entry Acceptance is my way forward. I am finally moving. I do not have to wait for them to change. For them to come along with me. I might be waiting forever. I won't wait forever. It all holds new meaning under different light. For the...

“I tried”

Claiming you tried is not enough if it does not grow legs does not make itself known does not move you hit the road bust down the door search every nook find a way Without the action of actually trying the words "I tried" are empty It must lead you from the cage in...

3:01am, Mountain Time

[CN: imagery of difficulty breathing; grief and loss] I wake with a startle and notice it is here. The shadow looms over me, watching. Waiting. I plead with the whites of its eyes to leave me be; to find me on a different night. Or never again. It ignores my...